We had a good time at the annual meeting in Nottingham on Saturday. Lots of information about the Doxycycline trial which we have raised money for and which will hopefully start soon, and an opportunity to discuss problems and issues amongst ourselves. We also had a discussion about home oxygen with Alison, a community respiratory nurse and our usual question and answer session.
The prom dress is also going well. On Sunday I was able to cut out the main material and start sewing it together and on Monday I finished sewing it together and pressed all the seams. Tonight's job is to fit the zip and then look at how I attach the lining to the outer.
My voice seems to be getting worse. I was able to do my dramatic reading in church on Sunday but when I rang the garage today to arrange for my car to be MOTed, the person I spoke to thought I was a man! It is very varied - some days I sound normal but other times I am very croaky and I cannot see a particular reason for it.
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